Hon. Amina Gerba: Minister, sickle cell disease is a genetic illness that disproportionately affects certain populations, particularly people of African and Caribbean descent. It is historically underdiagnosed and undertreated in Canada, despite recent advances in screening and treatment.

What’s the current federal strategy for improving early detection, access to treatment and funding for research into this disease in Canada?

Hon. Marjorie Michel, P.C., M.P., Minister of Health: Thank you for the question, Senator Gerba.

As you know, screening is already being done across the country for all newborns. By going directly into our communities, I’ve realized that immigrants of African descent often arrive here unaware of all that. We have to look at our approach to early detection so that future parents can find out whether they carry the gene.

In terms of research, it’s true that we need to do more of it. One project is already under way. In cooperation with the Canadian Institutes of Health Research, I’m looking at how we can examine that more closely.

However, the populations involved are small. For Black populations, it’s a big issue. It’s also very costly for families and the health care system, because the children frequently have to be hospitalized.

We’re also analyzing medications. Treatments are becoming increasingly effective. However, we’re currently having issues with getting these treatments in Canada, because we’re such a small market. We’re actively working on that.

Senator Gerba: While a small number of people may be affected, the cost to society is significant. Is the government considering establishing a national framework or action plan for this disease? The Senate has already passed legislation in that regard. Do you think the government will implement this national framework as soon as possible?

Ms. Michel: I know the bill is in the House and has been sponsored by a member of Parliament, so we’re waiting to see what happens in the other place. I’m working with the member on that.

If, or I should say when, the bill is passed in the House, that will give me, as Minister of Health, more leverage to move things forward.

I’m aware of the issue. Even at the training level, it’s essential that health care professionals be informed about this disease.